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Welcome |
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Welcome to Crohn's Zone, the interactive support site for people with Crohn's disease and ulcerative colitis.
We're based in the UK but we have a membership that extends into Europe, the US, Canada and Australia.
There are a number of facilities here to help support you such as chat rooms, personal stories, useful links, message boards; including an emotion forum, member’s health updates, living with a stoma, and many more. There are fun areas such as member galleries, and reference areas compiled by our members. We also organise UK meet-ups to enable members to make friends with other UK based IBD sufferers.
Make the site forums your first port of call to get instant contact with other sufferers who understand what you're experiencing. Membership is free - join today!
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CZ Summer Meet - York UK |
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CZ Summer Meet - York UK |
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Members Fund Rasing Page |
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 There has been a lot of people asking about adding a link or picture link to the site for fund rasing. The best way that we can do this is to add a page dedicated to Member Fund Rasing.
All that we ask is that you are raising the money for a registered charity and that the page we link to is a secure/valid one.
To view the new page click on 'Fund Rasing Page' under the members navigation list, left hane side or click on this link
http://crohnszone.org/viewpage.php?page_id=4
 on February 23 2008 03:02:52 ·
0 Comments · 646 Reads
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Steph's Story |
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 It was 3 weeks before I turned 21 and I was house bound and in agony. I had been going in and out of hospital every other night but every time I was turned away, being told that they couldn’t find a thing wrong with me. I hadn’t slept more than an hour each night for 6 weeks and hadn’t eaten a thing I lost 3 1/2 stone too. I was completely constipated which was new as I had been loose for as long as I could remember.
My husband would be calling my mam in the night only for her to hear me screaming in the background but still no one would listen to me. In fact I remember my old GP sitting in my living room and telling me I was going mad and that I needed to grow up.
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Annie's Story, |
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 Hi, my Names Annie, I am 13 on Monday hooray finally I am a teen! I was a very poorly little girl when I was 8, I was submitted to Great Ormand Street Hospital in London, to have an endoscope (colonoscopy done) It was awful especially the Bowel Prep! They found I had Crohns disease and put me on a long steroid treatment and Pentasa. It worked and in about half a year I was fine apart from the fat face which I HATED! I’ve been fine since now. I’ve been ill since December 07! Been having various treatments usually I would be taking azothioprine and Pentasa but after a while they stopped working well until December, I've had one big flare up continuously. Life has been hell. My family’s been torn up by it, my social life, my school life, and my friends... just everything. My parents say they understand but they don’t and never will, I’ve had constant arguments with them over it. I had steroid infusions done various ---Free diets. Nothing helped. I am now on Infliximab and Pentasa, The infliximab caused a rash earlier but I am still on it, it doesn’t seem to be making a difference though, I am still in a lot of pain. I had another colonoscopy done 2 weeks ago. The bowel prep is horrible :( . I was submitted into Great Ormand street to have it done. I was terrified. I’ve been back to hospital today and they said to carry on with the infliximab but now I must take codeine and paracetamal. I am taking Piroton for the rash too. I will keep you updated. Annie xx
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91 Tablets A Week |
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My name is Kirsty Bremner, I am 15 years of age and of average I take 91 tablets a week. The reason you ask, I have a condition called Crohn’s disease. The way I first found out was rather unpredicted, after three days of stomach pains, was got taken in to the Queen Margaret Hospital. To the accident and emergency department by my dad at about 10 o’clock, after an x-ray and a strong painkiller I was told I had Crohn’s disease, at first I was happy then angry; why had I not been told this by my proper doctor and why just because of my visit to this hospital but all the same there was pleased that I was no longer an unknown cause but a labelled one.
Crohn’s disease is a chronic inflammatory disease that can occur any where in the alimentary (digestive) tract. The inflammation extends through all layers of the gut wall and its characteristics are blotchy in distribution, where areas of normal tissue are intercepted with inflamed areas, known as skip lesions. The most commonly affected areas are at the lower part of the small intestine, the large intestine and the anus.
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